I decided to write about it so that at least I am sitting in front of a computer instead of a group of friends at church, or a colleague at school. (Not to mention, many of you have been waiting patiently for an update.)
People said Cecilia would receive exceptional care in the U.S. I was told there would be a team of doctors collaborating on my daughter's case. I knew that living close to one of the best children's hospitals in the world would be of great benefit.
But I had no idea...
We met with a surgeon at Children's Memorial Hospital in Chicago. When she walked in she had already been informed of our daughter's story. She was kind, and immediately referred to Lia as "my little girlfriend." After examining Lia's mouth she sat with us and began to explain exactly what our options were. She said that we needed to meet with the ENT (Ears, Nose and Throat specialist) as soon as possible. She also recommended that we set up an appointment with her in the downtown office where her team meets together once a month. (This is where I start to choke a little.) She said she works with a team of five doctors; A dentist, an orthodontist, an ENT, a speech specialist and herself. They would all be there for one reason; my daughter's well-being.
And then I think about how much a 15 minute consultation with any one of those people would cost.
And then I think of Cecilia traveling eight hours on a bus to Lima, where she would wait all day for an appointment in a substandard clinic for three dollars.
And then I realize that there's a really good reason for my emotions to jump me.
I know I don't live in a perfect country. I realize that this nation has made some horrific choices along the way (and continues to do so.) However, I can't help but feel God's blessing as I watch some of the brightest physicians, with the best training, and the greatest resources surround my daughter and do all they can to provide her with the greatest care.
In fact, just this afternoon we received a call from the surgeon's office telling us that Lia has an appointment next week to have an impression taken of her palate for a prosthesis. She said "unfortunately" we would have to go to the office in Chicago instead of the closer branch in Westchester. And again, I think, "Unfortunate would be traveling eight hours for minimal health care."
The road ahead is long and at times daunting. Luciana and I are just beginning to understand what it means to have a child with special needs. But unfortunate we are not...
No... we are truly blessed. Praise be to God.
By the way, there are more new pictures below...
mbp
Oh I bet she loves that little house......It is amazing to realize how blessed we are to have the resources here and having to travel one hour, not 8 hours and have 5 specialists ........We continue to pray for the Lord to watch over you, Luciana, Isa and Lia.
ReplyDeleteLove Dad
Oh, so glad you are at Children's! Our "team" there for Carmen was only two but we had SUCH a great experience (in BOTH locations--downtown & Westchester!). I was hoping that was where y'all would be. The first year we were here our plastic surgeon from Children's had us sending photos so he could track progress...completely free of charge, of course. So glad you can see God's blessing in the midst of tough stuff.
ReplyDeleteSo glad to get this post!!!! And so thankful that this appt. was one that encouraged you greatly!!!
ReplyDeleteWas wonderful getting caught up with Luciana tonight and knowing better how to pray for you guys!!!
Looking forward to more time with you guys and maybe some playdates while you and Luciana go out on a date! :) :)
Once again this brought tears to my eyes. It's interesting being on the "other side" of your family's adventure - having known Lia, and not you guys, from the start. Everyone here is SO thankful for how God has worked in her life and yours, making everything beautiful in His time. She looks so happy and already "at home" in the pictures, and it's nice to see Isabel smiling and laughing with her little sister.
ReplyDeleteLove from Peru,
Rachel
i love love LOVE lia's spiffy hair in the first pic. can't wait to spend some time with you guys soon. <3
ReplyDeleteMaybe we should all have to spen 8 housr waiting for something substandard so that we would get a reality check on our blessings. Thank you for reminding us of them, and how much we take them for granted.
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