Before I left for Peru I commented that sometimes my emotions jump me. I would find myself choking back tears that I didn't even know existed. Well, it's happening again... I decided to write about it so that at least I am sitting in front of a computer instead of a group of friends at church, or a colleague at school. (Not to mention, many of you have been waiting patiently for an update.)
People said Cecilia would receive exceptional care in the U.S. I was told there would be a team of doctors collaborating on my daughter's case. I knew that living close to one of the best children's hospitals in the world would be of great benefit.
But I had no idea...
We met with a surgeon at Children's Memorial Hospital in Chicago. When she walked in she had already been informed of our daughter's story. She was kind, and immediately referred to Lia as "my little girlfriend." After examining Lia's mouth she sat with us and began to explain exactly what our options were. She said that we needed to meet with the ENT (Ears, Nose and Throat specialist) as soon as possible. She also recommended that we set up an appointment with her in the downtown office where her team meets together once a month. (This is where I start to choke a little.) She said she works with a team of five doctors; A dentist, an orthodontist, an ENT, a speech specialist and herself. They would all be there for one reason; my daughter's well-being.
And then I think about how much a 15 minute consultation with any one of those people would cost.
And then I think of Cecilia traveling eight hours on a bus to Lima, where she would wait all day for an appointment in a substandard clinic for three dollars.
And then I realize that there's a really good reason for my emotions to jump me.
I know I don't live in a perfect country. I realize that this nation has made some horrific choices along the way (and continues to do so.) However, I can't help but feel God's blessing as I watch some of the brightest physicians, with the best training, and the greatest resources surround my daughter and do all they can to provide her with the greatest care.
In fact, just this afternoon we received a call from the surgeon's office telling us that Lia has an appointment next week to have an impression taken of her palate for a prosthesis. She said "unfortunately" we would have to go to the office in Chicago instead of the closer branch in Westchester. And again, I think, "Unfortunate would be traveling eight hours for minimal health care."
The road ahead is long and at times daunting. Luciana and I are just beginning to understand what it means to have a child with special needs. But unfortunate we are not...
No... we are truly blessed. Praise be to God.
By the way, there are more new pictures below...
mbp
